Kym Winter

Kym is the Founder/Director of the charity Rareminds. She has 25 years of experience as a psychotherapist and counsellor, supervisor and consultant.

Dr Avital Adato

Avital is the chief scientist for Yad Laneshima Isreal. She has a PhD in Molecular Genetics and specialises in CCHS.

Dr Martin Samuels & Tony Martins

Opening Address for 2024 CCHS Conference with Updates

Dr Antonia Dastamani

Dr Dastamani is a consultant in Paediatric Endocrinology and Diabetes at Great Ormand Street Hospital

Sthar Bowyer

Sthar is Mum to 8 year old Sadie who has been ventilated by tracheostomy, mask and PNPs.

Trustee Updates

Trustee Updates at CCHS Conference 2024