Kym Winter

Kym is the Founder/Director of the charity Rareminds. She has 25 years of experience as a psychotherapist and counsellor, supervisor and consultant.

Dr Avital Adato

Avital is the chief scientist for Yad Laneshima Isreal. She has a PhD in Molecular Genetics and specialises in CCHS.

Dr Martin Samuels & Tony Martins

Opening Address for 2024 CCHS Conference with Updates

Dr Antonia Dastamani

Dr Dastamani is a consultant in Paediatric Endocrinology and Diabetes at Great Ormand Street Hospital

Sthar Bowyer

Sthar is Mum to 8 year old Sadie who has been ventilated by tracheostomy, mask and PNPs.

Trustee Updates

Trustee Updates at CCHS Conference 2024

Identification of Therapeutic Molecules to Treat Respiratory Deficits Associated with CCHS

Presented by: Isabella Ceccherini and Muriel Thoby-Brisson

Identification of Medullary Neurons Underlying Congenital Hypo-Ventilation

Presented by: Luis R. Hernandez-Miranda